Monday, June 13, 2011

Longggg walk!

Today wasn't such a horrible day. I am feeling a little burnt out from being sick and being busy last week with VBS but that's nothing new. I woke up this morning and went to my mom's church to help with THEIR VBS, because apparently last weeks VBS wasn't enough for me lol. We went to Chick Fil A and ate lunch with some friends which was really nice. I came home and did some laundry and cleaned out my closet. Tomorrow I have to clean out the litter box and vacuum.

My MAJOR accomplishment for today was Rebel and I went for a 3 mile walk. According to the app on my phone we averaged about 3.6 MPH for the walk which is a pretty brisk pace. Rebel did EXTREMELY well, especially since there were a lot of other people walking their dogs. He didn't lunge at any of them, as a matter of fact, he, for the most part, ignored them all! I am very proud of him! As for me, I thought I did pretty well seeing as how I don't walk on a regular basis. At about 1.5 miles my knees and ankles were getting pretty sore but I figure if I don't do things because it hurts then I would never get anything done. And besides, pain is weakness leaving the body, right? :P

Tomorrow I am going to help Mom at VBS again because she will also be babysitting my nephew, AJ. He is getting SO big! He is trying to crawl :(. After VBS Mom and I are moving to a friend of ours house to house sit for A MONTH! I'm really excited because they have a pool. We will also be taking Rebel and Martin (the dogs) with us so hopefully Rebel and I will get to go on another nice walk. We shall see how badly my body is aching lol.

Well I'm beat, gunna go watch TV until I fall asleep! Night :)

Thursday, June 9, 2011

Nineteen with an incurable disease *CAUTION* this post(and probably a lot to follow) contain a lot of complaints

So, I have warned you in the title, I am in the mood to complain and I feel like I have a right.

I am nineteen years old and I have an incurable disease-- Fibromyalgia. For many of you who don't know Fibro is a disease that causes widespread, chronic pain to your muscles and joints along with many other symptoms and I was diagnosed with this disease when I was 16 years old. 16 is VERY young to be diagnosed with fibro as it is most commonly seen in women between the ages of 25 and 60 but here I sit. Lucky me right? When I was first diagnosed I didn't really think that my life would be altered that greatly but as I have gotten older (a whopping three years older!) I have quickly realized that life does change. Running, at least for long distances, is out of the question and walking for more than a few miles is challenging. My shoulders and neck constantly hurt and I am always tired. I try REALLY hard not to let my disease run my life but the reality is, sometimes it does. I wake up every morning, tired. All I want to do ALL day is go to sleep and when the time comes to go to bed, I can't go to sleep. Doctors can't seem to figure out the right combination of medication that will help me and quite frankly, I'm tired of them trying.

My mom also has fibromyalgia and while it's nice to have someone to talk to, it is also a constant reminder of what's to come. My mom used to LOVE playing basketball and baseball and now sometimes she can't even pick up a pen to write a check. She loves to read and cross stitch but her hands hurt so badly she can't turn the page or hold a needle. I'm terrified that someday, that will be my life. I am terrified that I won't be able to play catch with my kids or teach them how to ride horses (a sport that I LOVE). My mom was diagnosed when I was in middle school and has been living with fibromyalgia for about eight years. In eight years I will be 28. When I am 28, will I be in too much pain to read a book? It's a reality that eventually, ready or not, I will have to face.

Today, I helped with Vacation Bible School and after herding kids (which is much like herding cats) and standing in the hot sun I am COMPLETELY wiped out, but my day is not yet finished. In a few hours I am going to a Rough Riders baseball game with my family. I was looking forward to it and still am but I am SO tired!

Anywho... that's my soapbox... thanks for enduring my rants :)